Protocol summary

Study aim
- Determination of specific antibodies titre against pneumococcus in patients - Comparison of clinical manifestations and immunological data in patients with or without defect in specific antibodies production against pneumococcus
Design
Without control group
Settings and conduct
1. Select of patients diagnosed with selective IgA deficiency and ataxia-telangiectasia based on defined criteria 2. Completing questionnaire containg demographic, clinical manifestations and immunological data Method: 1. We will obtain a sample of 10-5 ml of blood sample of selected patients 2- A 0.5-milliliter dose of non-conjunctiva pneumococcal polyvalent vaccine (PNEUMO 23® Aventis, Pasteur, France) will inject in all patients. 3- Three weeks after pneumococcal vaccination, we will take 10-5 ml of blood of selected patients 4- specific antibody titre against pneumococcal will measure before and after vaccination by ELISA method 5- According to the specific antibody response to pneumococci, the patients will be classified into two groups and their relationship with the presence or absence of specific antibody response against pneumococci in patients with recurrent infections will be evaluated.
Participants/Inclusion and exclusion criteria
Patients diagnosed with selective IgA deficiency and ataxia-telangiectasia based on defined criteria
Intervention groups
All patients receive a 0.5-milliliter dose of non-conjunctiva pneumococcal polyvalent vaccine (PNEUMO 23® Aventis, Pasteur, France).
Main outcome variables
Defect in production of specific antibodies titre against pneumococcus in patients with ataxia-telangiectasia and selective IgA deficiency could be related to manifestation of recurrent infections

General information

Reason for update
Acronym
IRCT registration information
IRCT registration number: IRCT20190508043517N1
Registration date: 2019-06-17, 1398/03/27
Registration timing: registered_while_recruiting

Last update: 2019-06-17, 1398/03/27
Update count: 0
Registration date
2019-06-17, 1398/03/27
Registrant information
Name
asghar aghamohammadi
Name of organization / entity
Country
Iran (Islamic Republic of)
Phone
+98 21 6612 9187
Email address
aghamohammadi@sina.tums.ac.ir
Recruitment status
Recruitment complete
Funding source
Expected recruitment start date
2019-05-08, 1398/02/18
Expected recruitment end date
2019-12-09, 1398/09/18
Actual recruitment start date
empty
Actual recruitment end date
empty
Trial completion date
empty
Scientific title
Determination of specific antibody titre against Pneumococcus and its relation with recurrent infection in patients with ataxia-telangiectasia and IgA deficiency
Public title
ٍEvaluation of specific antibody titre against Pneumococcus in patients with Ataxia-telangiectasia and IgA deficiency
Purpose
Health service research
Inclusion/Exclusion criteria
Inclusion criteria:
Patients diagnosed with selective IgA deficiency and ataxia-telangiectasia based on defined criteria
Exclusion criteria:
Age
No age limit
Gender
Both
Phase
3
Groups that have been masked
No information
Sample size
Target sample size: 100
Randomization (investigator's opinion)
N/A
Randomization description
Blinding (investigator's opinion)
Not blinded
Blinding description
Placebo
Not used
Assignment
Single
Other design features

Secondary Ids

empty

Ethics committees

1

Ethics committee
Name of ethics committee
Tehran University of Medical Sciences
Street address
Nosrat
City
Tehran
Province
Tehran
Postal code
1419853773
Approval date
2019-05-04, 1398/02/14
Ethics committee reference number
IR.TUMS.CHMC.REC.1398.020

Health conditions studied

1

Description of health condition studied
Ataxia-telangiectasia
ICD-10 code
G11.3
ICD-10 code description
Cerebellar ataxia with defective DNA repair

2

Description of health condition studied
IgA deficiency
ICD-10 code
D80.2
ICD-10 code description
Selective deficiency of immunoglobulin A [IgA]

Primary outcomes

1

Description
Ataxia-telangiectasia
Timepoint
Before intervention
Method of measurement
According to the ESID diagnostic criteria

2

Description
IgA deficiency
Timepoint
Before intervention
Method of measurement
According to the ESID diagnostic criteria

3

Description
Sex
Timepoint
Before intervention
Method of measurement
Questionnaire

4

Description
Age
Timepoint
Before intervention
Method of measurement
Questionnaire

Secondary outcomes

1

Description
Determination of the pneumococcus specific antibodies level
Timepoint
Before and after intervention
Method of measurement
ELISA

Intervention groups

1

Description
One-half-milliliter dose of non-conjugate pneumococcal polyvalent vaccine (PNEUMO 23® Aventis, Pasteur, France)
Category
Treatment - Drugs

Recruitment centers

1

Recruitment center
Name of recruitment center
Research center for immunodeficiency diseases
Full name of responsible person
Asghar Aghamohammadi
Street address
Nosrat
City
Tehran
Province
Tehran
Postal code
1419853773
Phone
+98 21 6612 9187
Email
aghamohammadi@tums.ac.ir

Sponsors / Funding sources

1

Sponsor
Name of organization / entity
Tehran University of Medical Sciences
Full name of responsible person
Mohammad ali Sahraeiyan
Street address
Ghods
City
Tehran
Province
Tehran
Postal code
1415944911
Phone
+98 21 8898 7381
Email
mohammadalisahraeiyan@gmail.com
Grant name
Grant code / Reference number
Is the source of funding the same sponsor organization/entity?
Yes
Title of funding source
Tehran University of Medical Sciences
Proportion provided by this source
100
Public or private sector
Public
Domestic or foreign origin
Domestic
Category of foreign source of funding
empty
Country of origin
Type of organization providing the funding
Academic

Person responsible for general inquiries

Contact
Name of organization / entity
Tehran University of Medical Sciences
Full name of responsible person
Mahsa Sohani
Position
Master of Science (MSc)
Latest degree
Master
Other areas of specialty/work
Hematology
Street address
Nosrat
City
Tehran
Province
Tehran
Postal code
1419853773
Phone
+98 21 6612 9187
Email
sohanimahsa1369@gmail.com

Person responsible for scientific inquiries

Contact
Name of organization / entity
Tehran University of Medical Sciences
Full name of responsible person
Mahsa Sohani
Position
Master of Science (MSc)
Latest degree
Master
Other areas of specialty/work
Hematology
Street address
Nosrat
City
Tehran
Province
Tehran
Postal code
1419853773
Phone
+98 21 6612 9187
Email
sohanimahsa1369@gmail.com

Person responsible for updating data

Contact
Name of organization / entity
Tehran University of Medical Sciences
Full name of responsible person
Mahsa Sohani
Position
Master of Science (MSc)
Latest degree
Master
Other areas of specialty/work
Hematology
Street address
Nosrat
City
Tehran
Province
Tehran
Postal code
1419853773
Phone
+98 21 6612 9187
Email
sohanimahsa1369@gmail.com

Sharing plan

Deidentified Individual Participant Data Set (IPD)
Undecided - It is not yet known if there will be a plan to make this available
Study Protocol
Undecided - It is not yet known if there will be a plan to make this available
Statistical Analysis Plan
Undecided - It is not yet known if there will be a plan to make this available
Informed Consent Form
Undecided - It is not yet known if there will be a plan to make this available
Clinical Study Report
Undecided - It is not yet known if there will be a plan to make this available
Analytic Code
Undecided - It is not yet known if there will be a plan to make this available
Data Dictionary
Undecided - It is not yet known if there will be a plan to make this available
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