Protocol summary

Study aim
Evaluation of the effect of Imatinib on painful crisis of Patients with sickle cell anemia
Design
Phase 1 and 2 study on 10 patients and evaluation of the before and after effects of the drug
Settings and conduct
This study will conducted on patients with severe refractory sickle cell anemia in hematology clinics of Shiraz University of Medical Science. The patients will be entered the study for one year after obtaining informed consent and explanations about Imatinib and it's possible side effects. The patients will be excluded from the study if they do not tolerate the drug, declare dissatisfaction or show side effects.
Participants/Inclusion and exclusion criteria
Inclusion criteria: patients with severe sickle cell anemia unresposive to hydroxyurea. exclusion criteria: allergy to imatinib or addiction
Intervention groups
Intervention group: Prescription of Imatinib, made by Osveh, to patients with refractory sickle cell anemia , 100 mg 3 times per day and evaluation of the beneficial or untoward effect of it. Study duration is about one year.
Main outcome variables
Number of painful crisis per year in each patient, Total number of hospitalization due to painful crisis per year per patient

General information

Reason for update
Acronym
IRCT registration information
IRCT registration number: IRCT20131106015305N2
Registration date: 2020-12-01, 1399/09/11
Registration timing: retrospective

Last update: 2020-12-01, 1399/09/11
Update count: 0
Registration date
2020-12-01, 1399/09/11
Registrant information
Name
Mojtaba Karimi
Name of organization / entity
Shiraz University of Medical Science
Country
Iran (Islamic Republic of)
Phone
+98 71 1623 2937
Email address
mjkarimi@sums.ac.ir
Recruitment status
Recruitment complete
Funding source
Expected recruitment start date
2014-04-04, 1393/01/15
Expected recruitment end date
2015-04-05, 1394/01/16
Actual recruitment start date
2014-04-05, 1393/01/16
Actual recruitment end date
2014-09-23, 1393/07/01
Trial completion date
2020-03-20, 1399/01/01
Scientific title
Impact of imatinib on reducing the painful crisis in patients with sickle cell disease
Public title
Impact of imatinib on reducing the painful crisis in patients with sickle cell disease
Purpose
Treatment
Inclusion/Exclusion criteria
Inclusion criteria:
patients with sickle cell syndromes have at least 3 painful crisis or more per year despite adhearence to their standard treatment i.e. hydroxyurea
Exclusion criteria:
allergy to imatinib addiction to opiods
Age
From 18 years old to 60 years old
Gender
Both
Phase
1-2
Groups that have been masked
No information
Sample size
Target sample size: 10
Actual sample size reached: 8
Randomization (investigator's opinion)
N/A
Randomization description
Blinding (investigator's opinion)
Not blinded
Blinding description
Placebo
Not used
Assignment
Single
Other design features

Secondary Ids

empty

Ethics committees

1

Ethics committee
Name of ethics committee
Ethics committee of Shiraz University of Medical Sciences
Street address
Shiraz University of Medical Sciences, Zand Blvd
City
Shiraz
Province
Fars
Postal code
7134814336
Approval date
2014-07-28, 1393/05/06
Ethics committee reference number
IR.SUMS.REC.1393.4092

Health conditions studied

1

Description of health condition studied
Sickle cell anemia
ICD-10 code
D57
ICD-10 code description
Sickle-cell disorders

Primary outcomes

1

Description
Number of painful crisis per year in each patient
Timepoint
Before intervention and every 1 month for a year
Method of measurement
Patients self report, Hospitalization record, The amount of analgesic used per month in each patient

2

Description
Total number of hospitalization due to painful crisis per year per patient
Timepoint
Before study and then every 1 months for 1 years
Method of measurement
Patients self report, Hospitalization record

Secondary outcomes

empty

Intervention groups

1

Description
Intervention group: Administration of Imatinib, made by Osveh, 100mg three times per day , to continue for one year
Category
Treatment - Drugs

Recruitment centers

1

Recruitment center
Name of recruitment center
Namazi hospital
Full name of responsible person
Mojtaba Karimi
Street address
Namazi hospital, Zand square
City
Shiraz
Province
Fars
Postal code
7193613311
Phone
+98 71 3647 4301
Email
mjkarimi@sums.ac.ir

Sponsors / Funding sources

1

Sponsor
Name of organization / entity
Shiraz University of Medical Sciences
Full name of responsible person
Dr Abbas Rezaianzadeh
Street address
Research deputy, Shiraz University of Medical Sciences, Zand Blvd
City
Shiraz
Province
Fars
Postal code
7134814336
Phone
+98 71 3235 7282
Email
rezaiana@sums.ac.ir
Web page address
https://research.sums.ac.ir/page-researchm/fa/205/form/pId28590
Grant name
Grant code / Reference number
Is the source of funding the same sponsor organization/entity?
Yes
Title of funding source
Shiraz University of Medical Sciences
Proportion provided by this source
100
Public or private sector
Public
Domestic or foreign origin
Domestic
Category of foreign source of funding
empty
Country of origin
Type of organization providing the funding
Academic

Person responsible for general inquiries

Contact
Name of organization / entity
Shiraz University of Medical Sciences
Full name of responsible person
Mojtaba Karimi
Position
Assistant professor
Latest degree
Subspecialist
Other areas of specialty/work
Hematology
Street address
Ward of Internal Medicine, Namazi Hospital, Zand Blvd
City
Shiraz
Province
Fars
Postal code
71936-13311
Phone
+98 71 1623 2937
Fax
Email
mjkarimi@sums.ac.ir

Person responsible for scientific inquiries

Contact
Name of organization / entity
Shiraz University of Medical Sciences
Full name of responsible person
Mojtaba Karimi
Position
Assistant professor
Latest degree
Subspecialist
Other areas of specialty/work
Hematology
Street address
Namazi Hospital, Zand blvd
City
Shiraz
Province
Fars
Postal code
71936-13311
Phone
+98 71 1623 2937
Fax
Email
mjkarimi@sums.ac.ir

Person responsible for updating data

Contact
Name of organization / entity
Shiraz University of Medical Sciences
Full name of responsible person
Mojtaba Karimi
Position
Assistant professor
Latest degree
Subspecialist
Other areas of specialty/work
Hematology
Street address
Ward of Internal Medicine, Namazi Hospital, Zand blvd
City
Shiraz
Province
Fars
Postal code
71936-13311
Phone
+98 71 1623 2937
Fax
Email
mjkarimi@sums.ac.ir

Sharing plan

Deidentified Individual Participant Data Set (IPD)
No - There is not a plan to make this available
Justification/reason for indecision/not sharing IPD
There is no further information
Study Protocol
No - There is not a plan to make this available
Statistical Analysis Plan
No - There is not a plan to make this available
Informed Consent Form
No - There is not a plan to make this available
Clinical Study Report
No - There is not a plan to make this available
Analytic Code
No - There is not a plan to make this available
Data Dictionary
No - There is not a plan to make this available
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