Protocol summary

Study aim
Assessment of safety and tolerability
Design
A controlled, parallel, randomized, open label clinical trial, phase I/II on 24 patients
Settings and conduct
Location: Royan Institute and Rajaie Cardiovascular, Medical and Research Center After enrollment, patients are randomly divided into 2 groups of cell and control. only patients which in cell group undergo bone marrow biopsy and their bone marrow-derived mononuclear cells (MNCs) are isolated and transferred to the relevant hospital in special containers and under sterile conditions and are used for injection into the coronary arteries. Patients in both groups are followed up at specific times and the data are evaluated using software.
Participants/Inclusion and exclusion criteria
Inclusion criteria: Age between 1-16 year (s) Both sex LVEF<45% (echocardiography) Time of Diagnosis > 3m Resistance to Standard therapy > 1m (Dig, ACEi, Diuretic, BB) Informed consent Exclusion criteria: Congenital heart disease Active infection less than one month Dysrhythmia Cardiogenic shock Renal failure
Intervention groups
1- Recipient group of autologous bone marrow derived mononuclear cells 2- Control group (with no intervention)
Main outcome variables
Adverse events

General information

Reason for update
Acronym
IRCT registration information
IRCT registration number: IRCT20080728001031N27
Registration date: 2021-01-10, 1399/10/21
Registration timing: retrospective

Last update: 2021-01-10, 1399/10/21
Update count: 0
Registration date
2021-01-10, 1399/10/21
Registrant information
Name
Nasser Aghdami
Name of organization / entity
Royan Institute
Country
Iran (Islamic Republic of)
Phone
+98 21 2356 2000
Email address
nasser.aghdami@royaninstitute.org
Recruitment status
Recruitment complete
Funding source
Expected recruitment start date
2013-05-01, 1392/02/11
Expected recruitment end date
2016-03-29, 1395/01/10
Actual recruitment start date
2014-10-01, 1393/07/09
Actual recruitment end date
2016-12-29, 1395/10/09
Trial completion date
2018-03-20, 1396/12/29
Scientific title
Safety Assessment of Intracoronary Transplantation of Autologous Bone Marrow Derived Mononuclear Cells in Pediatric with Dilated Cardiomyopathy in Comparison with Control Group: Clinical Trial Phase I/II
Public title
Effect of bone marrow derived mononuclear cells in treatment of pediatric with cardiomyopathy
Purpose
Treatment
Inclusion/Exclusion criteria
Inclusion criteria:
LVEF<45% (echocardiography) Time of Diagnosis > 3m Resistance to Standard therapy > 1m (Dig, ACE, Diuretic, BB)
Exclusion criteria:
Critical aortic stenosis Severe coarctation Coronary artery anomalies Cardiogenic shock
Age
From 1 year old to 16 years old
Gender
Both
Phase
1-2
Groups that have been masked
No information
Sample size
Target sample size: 30
Actual sample size reached: 24
Randomization (investigator's opinion)
Randomized
Randomization description
Random number table was provided by statistician using randomization website (block randomization with block size of 4) according to individual unit and allocation was performed by a third party which is not directly connected with the clinical trial.
Blinding (investigator's opinion)
Not blinded
Blinding description
Placebo
Not used
Assignment
Parallel
Other design features

Secondary Ids

empty

Ethics committees

1

Ethics committee
Name of ethics committee
Ethics committee of Royan Institute
Street address
Royan Alley, Eastern Hafez St, Northern Banihashem St, 45 m Ghasem Soleymani Highway
City
Tehran
Province
Tehran
Postal code
1665664511
Approval date
2012-04-15, 1391/01/27
Ethics committee reference number
K/91/1152

Health conditions studied

1

Description of health condition studied
Dilated cardiomyopathy
ICD-10 code
I42.0
ICD-10 code description
Dilated cardiomyopathy

Primary outcomes

1

Description
Assessment of safety and tolerability
Timepoint
3 months
Method of measurement
Physical examination and clinical symptom

Secondary outcomes

1

Description
ProBNP measurement
Timepoint
0, 2 weeks, 1, 2, 4 and 6 months
Method of measurement
Lab test

Intervention groups

1

Description
Intervention group: This group underwent bone marrow aspiration in amount of 2 cc/kg. This sample transfers to clean room of Royan institute for mononuclear cells processing. Then, patients underwent coronary angiography in lass than 6 hours and theses cells which are suspended in 10 cc of normal saline will be infused intracoronary.
Category
Treatment - Other

2

Description
Control group: This group do not underwent bone marrow aspiration and do not receive placebo. So, they are as a comparison group.
Category
N/A

Recruitment centers

1

Recruitment center
Name of recruitment center
Rajaie Cardiovascular Medical and Research Center
Full name of responsible person
Dr Seyed Mohammad Mahdavi
Street address
Niyayesh ave crossroad, Valiasr st.
City
Tehran
Province
Tehran
Postal code
1995614331
Phone
+98 21 23921
Email
md_niaki@yahoo.com

Sponsors / Funding sources

1

Sponsor
Name of organization / entity
Royan Institute
Full name of responsible person
Abdolhossein shahverdi
Street address
Royan Alley, Eastern Hafez St, Northern Banihashem St, 45 m Ghasem Soleymani Highway
City
Tehran
Province
Tehran
Postal code
1665664511
Phone
+98 21 2356 2000
Email
shahverdi@royaninstitute.org
Grant name
Grant code / Reference number
Is the source of funding the same sponsor organization/entity?
Yes
Title of funding source
Royan Institute
Proportion provided by this source
100
Public or private sector
Public
Domestic or foreign origin
Domestic
Category of foreign source of funding
empty
Country of origin
Type of organization providing the funding
Academic

Person responsible for general inquiries

Contact
Name of organization / entity
Royan Institute
Full name of responsible person
Hoda Madani
Position
Researcher
Latest degree
Medical doctor
Other areas of specialty/work
Cell science and application
Street address
Royan Alley, Eastern Hafez St, Northern Banihashem St, 45 m Ghasem Soleymani Highway
City
Tehran
Province
Tehran
Postal code
1665664511
Phone
+98 21 2251 8388
Email
hoda62_m@yahoo.com

Person responsible for scientific inquiries

Contact
Name of organization / entity
Royan Institute
Full name of responsible person
Nasser Aghdami
Position
Associate professor
Latest degree
Ph.D.
Other areas of specialty/work
Immunology
Street address
Royan Alley, Eastern Hafez St, Northern Banihashem St, 45 m Ghasem Soleymani Highway
City
Tehran
Province
Tehran
Postal code
1665664511
Phone
+98 21 2251 8388
Email
nasseragh@gmail.com

Person responsible for updating data

Contact
Name of organization / entity
Royan Institute
Full name of responsible person
Hoda Madani
Position
M.D/Researcher
Latest degree
Medical doctor
Other areas of specialty/work
Cell science and application
Street address
Royan Alley, Eastern Hafez St, Northern Banihashem St, 45 m Ghasem Soleymani Highway
City
Tehran
Province
Tehran
Postal code
1665664511
Phone
+98 21 2251 8388
Email
hoda62_m@yahoo.com

Sharing plan

Deidentified Individual Participant Data Set (IPD)
Undecided - It is not yet known if there will be a plan to make this available
Study Protocol
Undecided - It is not yet known if there will be a plan to make this available
Statistical Analysis Plan
Undecided - It is not yet known if there will be a plan to make this available
Informed Consent Form
Undecided - It is not yet known if there will be a plan to make this available
Clinical Study Report
Undecided - It is not yet known if there will be a plan to make this available
Analytic Code
Undecided - It is not yet known if there will be a plan to make this available
Data Dictionary
Undecided - It is not yet known if there will be a plan to make this available
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