Protocol summary

Study aim
Evaluation of safety and efficacy of autologous transplantation of cultured fibroblast on amniotic membrane (AM, as coverage) for healing of mitten hands
Design
A clinical trial, uncontrolled, unblinded and not randomized on 20 patients
Settings and conduct
EB patients with mitten hands deformity of who willing to recruit to this study attended to the Hazrat-e-Fateme Hospital, Tehran, Iran, or the Dermatology Clinic of Cell Therapy Center at Royan Institute, Tehran, Iran. When the consent form was accepted and the lab test was confirmed, a small skin biopsy was removed from retro auricle and fibroblast cells were separated and cultured. These cells were seeded on AM and the microbial test was done as evidence to prove the safety. Under general anesthesia, when the hands adhesion was removed, the autologous fibroblast cultured on AM was transplanted to the both hands and the hands were dressed afterward.
Participants/Inclusion and exclusion criteria
Inclusion Criteria: Both genders, Age: 2-30y, No history of other systemic disease, No history of other cell therapy method, No infection in donor or recipient site. Exclusion Criteria: Age less than 2y or more than 30y, History of other systemic disease, History of other cell therapy method, Infection in donor or recipient site positive, Lab tests for contagious viral diseases, Pregnancy or lactating History of malignancy.
Intervention groups
Biological: cell transplantation autologous transplantation of cultured fibroblast on amniotic membrane in patients with Epidermolysis Bullosa with mitten hands.
Main outcome variables
Evaluation of adverse event after transplantation

General information

Reason for update
Acronym
IRCT registration information
IRCT registration number: IRCT20080728001031N28
Registration date: 2021-02-01, 1399/11/13
Registration timing: retrospective

Last update: 2021-02-01, 1399/11/13
Update count: 0
Registration date
2021-02-01, 1399/11/13
Registrant information
Name
Nasser Aghdami
Name of organization / entity
Royan Institute
Country
Iran (Islamic Republic of)
Phone
+98 21 2356 2000
Email address
nasser.aghdami@royaninstitute.org
Recruitment status
Recruitment complete
Funding source
Expected recruitment start date
2010-04-19, 1389/01/30
Expected recruitment end date
2012-09-01, 1391/06/11
Actual recruitment start date
2010-07-01, 1389/04/10
Actual recruitment end date
2012-12-01, 1391/09/11
Trial completion date
2013-12-06, 1392/09/15
Scientific title
Safety and efficacy of transplantation of autologous cultured fibroblast on amniotic membrane for treatment of epidermolysis bullosa patients with mitten hand deformity after hand surgery phase 1
Public title
Evaluation of transplantation of autologous cultured fibroblast on amniotic membrane for treatment of epidermolysis bullosa patients with mitten hand deformity
Purpose
Treatment
Inclusion/Exclusion criteria
Inclusion criteria:
Epidermolysis Bullosa patients with mitten hand deformity Patients with 2 to 30 years old
Exclusion criteria:
History of other systemic disease History of other cell therapy method Infection in donor or recipient Site Positive Lab tests for contagious viral diseases Pregnancy or lactating
Age
From 2 years old to 30 years old
Gender
Both
Phase
1
Groups that have been masked
No information
Sample size
Target sample size: 20
Actual sample size reached: 12
Randomization (investigator's opinion)
Not randomized
Randomization description
Blinding (investigator's opinion)
Not blinded
Blinding description
Placebo
Not used
Assignment
Single
Other design features

Secondary Ids

empty

Ethics committees

1

Ethics committee
Name of ethics committee
Royan Institute Ethics Committee
Street address
Eastern Hafez St, Northern Banihashem St, 45 m Ghasem Soleymani highway
City
Tehran
Province
Tehran
Postal code
1665664511
Approval date
2012-09-27, 1391/07/06
Ethics committee reference number
EC /91/1082

Health conditions studied

1

Description of health condition studied
Epidermolysis Bullosa patients with mitten hand deformity
ICD-10 code
Q81.2
ICD-10 code description
Epidermolysis bullosa dystrophica

Primary outcomes

1

Description
Safety assessment of autologous transplantation of cultured fibroblast on amniotic membrane for healing of mitten hands.
Timepoint
Patients' dressings were changed every 7 days until the wound was completely healed. Then the visits were done in 3, 6, 12 months and then annually.
Method of measurement
Physical examination

2

Description
Histological evaluation of autologous transplantation of cultured fibroblast on amniotic membrane for healing of mitten hands.
Timepoint
6 month after transplantation
Method of measurement
Biopsy

Secondary outcomes

empty

Intervention groups

1

Description
Intervention group: Transplantation of autologous cultured Fibroblast on amniotic membrane for treatment of epidermolysis bullosa patients with mitten hand deformity
Category
Treatment - Other

Recruitment centers

1

Recruitment center
Name of recruitment center
Royan Institute
Full name of responsible person
Dr. Nasser Aghdami
Street address
Royan Alley, Eastern Hafez St, Northern Banihashem St, 45 m Ghasem Soleymani Highway
City
Tehran
Province
Tehran
Postal code
1665664511
Phone
+98 21 2251 8388
Email
nasseragh@gmail.com

Sponsors / Funding sources

1

Sponsor
Name of organization / entity
Royan Institute
Full name of responsible person
Abdolhossein Shahverdi
Street address
Royan Alley, Eastern Hafez St, Northern Banihashem St, 45 m Ghasem Soleymani Highway
City
Tehran
Province
Tehran
Postal code
1665664511
Phone
+98 21 2356 2211
Email
shahverdi@royaninstitute.org
Grant name
Grant code / Reference number
Is the source of funding the same sponsor organization/entity?
Yes
Title of funding source
Royan Institute
Proportion provided by this source
100
Public or private sector
Public
Domestic or foreign origin
Domestic
Category of foreign source of funding
empty
Country of origin
Type of organization providing the funding
Academic

Person responsible for general inquiries

Contact
Name of organization / entity
Royan Institute
Full name of responsible person
Hoda Maadani
Position
Researcher
Latest degree
Medical doctor
Other areas of specialty/work
Dermatology
Street address
Royan Alley, Eastern Hafez St, Northern Banihashem St, 45 m Ghasem Soleymani Highway
City
Tehran
Province
Tehran
Postal code
1665664511
Phone
+98 21 2251 8388
Email
hoda62_m@yahoo.com

Person responsible for scientific inquiries

Contact
Name of organization / entity
Royan Institute
Full name of responsible person
Nasser Aghdami
Position
Associate Professor
Latest degree
Ph.D.
Other areas of specialty/work
Dermatology
Street address
Royan Alley, Eastern Hafez St, Northern Banihashem St, 45 m Ghasem Soleymani Highway
City
Tehran
Province
Tehran
Postal code
1665664511
Phone
+98 21 2251 8388
Email
nasseragh@gmail.com

Person responsible for updating data

Contact
Name of organization / entity
Royan Institute
Full name of responsible person
Hoda Madani
Position
Researcher/M.D
Latest degree
Medical doctor
Other areas of specialty/work
Dermatology
Street address
Royan Institute, Eastern Hafez St,Northern Banihashem St, 45 m Resalat highway
City
Tehran
Province
Tehran
Postal code
1665664511
Phone
+98 21 2251 8388
Fax
+98 21 2251 6465
Email
hoda62_m@yahoo.com
Web page address

Sharing plan

Deidentified Individual Participant Data Set (IPD)
Undecided - It is not yet known if there will be a plan to make this available
Study Protocol
No - There is not a plan to make this available
Statistical Analysis Plan
No - There is not a plan to make this available
Informed Consent Form
No - There is not a plan to make this available
Clinical Study Report
No - There is not a plan to make this available
Analytic Code
No - There is not a plan to make this available
Data Dictionary
No - There is not a plan to make this available
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